Sunday, July 14, 2013

Some traction and new SHOES

After my entry about trying to get the ball rolling I got lots of things almost checked off the list :)

1) I went to a play date at the new Early Start group. I was part of a dedicated hearing loss group, so having several other parents (all hearing) with children with hearing aids or cochlear implants was a different experience (as compared to Santa Cruz County, where no other kids with hearing loss were at the play dates).  Everyone was nice, and the woman I met with said she thought from here on out Peter should get two weekly home visits starting that last week in August. I forgot to give her the massive packet of paperwork, but at least all the forms are filled out ;). The one bummer: the play groups are on Fridays, so I will have to choose between CSD (the School for the Deaf) and the Early Start get together. It is unfortunate the two big programs don't have different days, and at least some days where they welcome each others families. Sharing information, and having access to both environments woud be so beneficial to kids with hearing loss (in my mind). Also, building a bridge between the ASL and spoken English programs would help families see that there are lots of options out there, and find what combination works best for their child. Something else to work on in my spare time ;)

2) my meeting with the Oral School was pushed out until next Tuesday. I can't say it was a total surprise, more like par for the course. If this wasn't the only program of its kind for the youngest kids I think they would have to run a much tighter ship. Bleah!

3) I signed Samantha up for a preschool that meets Mondays, Tuesdays, and Thursdays!  I visited and LOVED the environment, and the teacher was so open and friendly and happy! Such a change from the last preschool teacher I worked with! And the way the schedule works means that no matter what days JWPOSD (the Oral School) recommends, I will have at least one day a week when I can drive the carpool (there are at least two other mountain families there) or maybe even work if I get baby care for Peter. My mom offered to do most of the work shifts, though, so I will just be doing the monthly meetings and committee work as my part of the cooperative preschool.  I got most of that paperwork done, and just need to send in the check.

4) got the re-enrollment packet for Sydney filled out. There was a ton of paperwork! And I can't turn it back in until she gets a TB test.  Since we officially "left" the county to go to school last year (even though we were at home, or in Los Gatos for classes) they require the TB teats to come back. Luckily I need a TB test, as does Samantha for the preschool, and Peter still hadn't done his 12-month well-baby visit, so all of that is Wednesday. So #4 is almost done, too.

5) The second surgery is scheduled! August 7th. So Peter will have two ears starting August 27th, which is also the day JWPOSD starts. So happy!! I still need to arrange kid care and all that for surgery day, since my mother-in-law isn't around, but several people have offered help. I am soooo thankful for all my awesome friends that have helped me out by watching my girls when I have appointments for Peter.

6) Vacation. I am not saying no with a capital N, but I don't think it's gonna happen. Looking at the calendar, with Pre-Op and Dr. Visits, the surgery, post-op, and THREE different start dates for schools I don't see a good time.

So we have traction. We are moving forward! And on Friday, at the Early Start parking lot I said to Peter, "let's get your shoes". I reached for them, and he signed SHOES for the first time!  My boy is so smart!

2 comments:

  1. Yay! Second ear surgery! Butters' is the 22nd of August. It will be so great to have that all behind you. Smooth sailing ahead!

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  2. ug, not surprising about scheduling and jw. i am telling you, email me and we can chat. i LOVED so much of what they did for my girl and i can elaborate in a non-public forum, but the therapists and teachers and families are what makes that a place worth going to. needless to say there is some cluelessness at a certain level. if you went next mon, wed or fri i'd be there :) for summer school. anyway, feel free to connect with me if you want to talk more :)

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